Diabetes Talking

Question:

TC3 wrote:

Cheryl, God girl you made my day. I had 3 sticks today, the new tech couldn’t find the venous part of my graft. The nurse was right next to her and she found it right away, but infiltrated. At least they hadn’t stared the hepron yet so they could pull the needle out and they were high, so they had to go low and the nurse doesn’t like to do that. But it wasn’t so bad. I found out 2 more people at my unit has died. That makes 5 in 3 months, 3 were old, the other 2 had alot of different things besides kidney problems. I got off track, sorry. If I could eat anything I want, it would be a BIG banana split with real whip cream (lots of it). Got to run. Paulette – Hide quoted text — Show quoted text -> Bradley, >   I am the Queen of Moaning about being thirsty on this ng.  I bought a huge > diet coke tonight after dialysis and guzzled it like a cold beer on a 100 > degree day.  I was unbelievably thirsty.  So 30 phos lo and 50 Renagel > later…hee hee, just kidding, I am very content and not thirsty anymore. > This diet does suck big time.  I am adjusting, however, I am starting to not > miss things.  A lot of this is simple psychology.  I have been a diabetic > for 26 years and if I think about creme doughnuts long enough, I eat one.  I > will walk a mile for one.  So here is my post transplant meal(when I am > ready) a tall tall tall glass of Diet coke with ice, a glass of wine and > followed post meal with about 3 cups of coffee,  a very big plate of > Broccoli cavatelli(sp?) with a huge creme doughnut for dessert, not one of > those wimpy ass Dunkin Donuts, but a real-from-the -bakery mother weighing > in at two pounds.  OH, and about 10 mozzarella sticks.  mmmmmmmm  I can’t > wait.  AHHHHHHH  to dreammmmmmm…Cheryl > "BRADLEY DRAKE" <CRA…@webtv.net> wrote in message > news:11092-38866AE2-2@storefull-156.iap.bryant.webtv.net… > > In a word it (sucks)but its someting we all on dialysis have to live > > with or die by……I myself watch my potassium food very carefully i > > soak my potatoes for 6 hours before i eat them and i dont eat any fruit > > if i dont receive a kidney son my downfall will be the fluid on the > > average i go into diaysis with five kilos on i always get bitched at > > about it but i just am so damn thirsty……but i guess we all are…..

Response:

Jim W. said: "I’ve only recently had a problem with phosphates (not phosphorus) and  have cut out on all cheese. I only have a tiny bit of milk on breakfast  cereal. A month of AluCaps has got it down to an acceptable level. And  I’m now back on Calcichews, except that my Ca is up, so they’re now  trying to balance that as well! Its worth remembering that Phosphate  doesn’t dialyze out!!" The word "phosphorus" was Latin for "morning star" (usually Venus) and it was derived from the Greek, "phosphoros" = "bringer of light".  The chemical element, phosphorus, ignites easily at room temperature producing a flash of light, hence its name. Any phosphate is an ester of phosphoric acid, which in turn is an oxygen acid of phosphorus.  So in speaking of phosphates, one is speaking of phosphorus too.  In terms of diet, phosphates are usually found in the "dark" colas, hence the restriction on those for ESRD patients. Peter T.

Response:

seasons change <Come2je…@webtv.net> wrote: > Lately I’ve discovered that a lot of people seem to say that they drink > more than the 4 glasses allowed and find that they can stretch the food > limitations without reprucussions. Early on at my center, the dieition > told me that most patients do not follow the diet restrictions. I would > be interested to know what moderation means to you and just how far > you’ve been able to stretch things.

Well here’s my comments! strange way of measuring fluids for a dialysis patient. As in 4 glasses! Usually its Urine output in 24 hrs + 500 mls. I have zilch urine output!! I don’t have a problem with fluid I ususally don’t have more than 2 litres total to take off on dialysis. Usually its more like 1.5 or 1.7 My K tends to run low, adn I know when it is as I get disorientated, and get a strange feeling of ‘coming apart’ like I’m 2 people, one on each half of my body! DOn’t know if anyone else has experienced this! I’ve only recently had a problem with phophates (not phosphorus) and have cut out on all cheese. I only have a tiny bit of milk on breakfast cereal. A month of AluCaps has got it down to an acceptable level. And I’m now back on Calcichews, except that my Ca is up, so they’re now trying to balance that as well! Its worth remebering that Phosphate doesn’t dialyse out!! I find that I can eat most things, the odd potato, occaisional orange, Don’t have a problem with toms. We always use tinned toms for pasta sauces and I’ve not had a high K yet. I find the biggest problems with eating out are the large amounts of sugar and salt that are added to everything. I avoid cola’s and such like the plague ‘cos they make me thirsty. Fruit juice and carbonated water is my preffered bevvy, as is tea!! Changing my brand of cornflakes made a big difference to the amount of salt at breakfast time! LOL!! Anyways there my bit! Enjoy! // Jim!

Response:

Hot tubs are not so hot for diabetics either, can flux glucoses and a whole other host of problems.  Cheryl "Celeste Brion" <bri…@penn.com> wrote in message

news:sGCh4.471$G.1850@newsfeed.slurp.net… – Hide quoted text — Show quoted text -> Do not sit in a sauna or hot tub if you have high blood pressure this is > extremely hard on your body and will make your heart race if it is too hot. > Celeste > staci martinez <stacizenit…@webtv.net> wrote in message > news:14969-38868B77-3@storefull-267.iap.bryant.webtv.net… > | Try flavored ice cubes, also if you know you are over your water weight, > | try sitting in a sauna.  You need to sweat off the water, I found this > | the best way to lose my excess water .  I know it sucks, but try these > | things to help in your battle. I was lucky, I was only on dialysis for a > | year, my wife was a match, a living non-related donor.  There is hope. > | Hard candy isn’t too bad either. > | > | Praying for you, > | Patrick L. Martiez > |

Response:

Do not sit in a sauna or hot tub if you have high blood pressure this is extremely hard on your body and will make your heart race if it is too hot. Celeste staci martinez <stacizenit…@webtv.net> wrote in message

news:14969-38868B77-3@storefull-267.iap.bryant.webtv.net… | Try flavored ice cubes, also if you know you are over your water weight, | try sitting in a sauna.  You need to sweat off the water, I found this | the best way to lose my excess water .  I know it sucks, but try these | things to help in your battle. I was lucky, I was only on dialysis for a | year, my wife was a match, a living non-related donor.  There is hope. | Hard candy isn’t too bad either. | | Praying for you, | Patrick L. Martiez |

Response:

Celeste,   You know those big sport jugs they use?  I will have one permanently(sp) hung around my neck like a St Bernard.  If I ate all those peppers I would need 4 Prilosec a day!  LOL  Cheryl "Celeste Brion" <bri…@penn.com> wrote in message

news:00wh4.225$G.3139@newsfeed.slurp.net… > LOL……..you go girl >     I could not wait for the go ahead to eat what I wanted after my > transplant.  I know the first month that drank a gallon of water a day and 9 > pounds of green peppers and onions. > Celeste > TC3 <t…@erols.com> wrote in message

news:865u96$340$1@bob.news.rcn.net… – Hide quoted text — Show quoted text -> | Bradley, > |   I am the Queen of Moaning about being thirsty on this ng.  I bought a > huge > | diet coke tonight after dialysis and guzzled it like a cold beer on a 100 > | degree day.  I was unbelievably thirsty.  So 30 phos lo and 50 Renagel > | later…hee hee, just kidding, I am very content and not thirsty anymore. > | This diet does suck big time.  I am adjusting, however, I am starting to > not > | miss things.  A lot of this is simple psychology.  I have been a diabetic > | for 26 years and if I think about creme doughnuts long enough, I eat one. > I > | will walk a mile for one.  So here is my post transplant meal(when I am > | ready) a tall tall tall glass of Diet coke with ice, a glass of wine and > | followed post meal with about 3 cups of coffee,  a very big plate of > | Broccoli cavatelli(sp?) with a huge creme doughnut for dessert, not one of > | those wimpy ass Dunkin Donuts, but a real-from-the -bakery mother weighing > | in at two pounds.  OH, and about 10 mozzarella sticks.  mmmmmmmm  I can’t > | wait.  AHHHHHHH  to dreammmmmmm…Cheryl > | "BRADLEY DRAKE" <CRA…@webtv.net> wrote in message > | news:11092-38866AE2-2@storefull-156.iap.bryant.webtv.net… > | > In a word it (sucks)but its someting we all on dialysis have to live > | > with or die by……I myself watch my potassium food very carefully i > | > soak my potatoes for 6 hours before i eat them and i dont eat any fruit > | > if i dont receive a kidney son my downfall will be the fluid on the > | > average i go into diaysis with five kilos on i always get bitched at > | > about it but i just am so damn thirsty……but i guess we all are….. > | > > | > |

Response:

Try flavored ice cubes, also if you know you are over your water weight, try sitting in a sauna.  You need to sweat off the water, I found this the best way to lose my excess water .  I know it sucks, but try these things to help in your battle. I was lucky, I was only on dialysis for a year, my wife was a match, a living non-related donor.  There is hope. Hard candy isn’t too bad either. Praying for you, Patrick L. Martinez

Response:

Try flavored ice cubes, also if you know you are over your water weight, try sitting in a sauna.  You need to sweat off the water, I found this the best way to lose my excess water .  I know it sucks, but try these things to help in your battle. I was lucky, I was only on dialysis for a year, my wife was a match, a living non-related donor.  There is hope. Hard candy isn’t too bad either. Praying for you, Patrick L. Martiez

Response:

LOL……..you go girl     I could not wait for the go ahead to eat what I wanted after my transplant.  I know the first month that drank a gallon of water a day and 9 pounds of green peppers and onions. Celeste TC3 <t…@erols.com> wrote in message news:865u96$340$1@bob.news.rcn.net…

| Bradley, |   I am the Queen of Moaning about being thirsty on this ng.  I bought a huge | diet coke tonight after dialysis and guzzled it like a cold beer on a 100 | degree day.  I was unbelievably thirsty.  So 30 phos lo and 50 Renagel | later…hee hee, just kidding, I am very content and not thirsty anymore. | This diet does suck big time.  I am adjusting, however, I am starting to not | miss things.  A lot of this is simple psychology.  I have been a diabetic | for 26 years and if I think about creme doughnuts long enough, I eat one. I | will walk a mile for one.  So here is my post transplant meal(when I am | ready) a tall tall tall glass of Diet coke with ice, a glass of wine and | followed post meal with about 3 cups of coffee,  a very big plate of | Broccoli cavatelli(sp?) with a huge creme doughnut for dessert, not one of | those wimpy ass Dunkin Donuts, but a real-from-the -bakery mother weighing | in at two pounds.  OH, and about 10 mozzarella sticks.  mmmmmmmm  I can’t | wait.  AHHHHHHH  to dreammmmmmm…Cheryl | "BRADLEY DRAKE" <CRA…@webtv.net> wrote in message | news:11092-38866AE2-2@storefull-156.iap.bryant.webtv.net… | > In a word it (sucks)but its someting we all on dialysis have to live | > with or die by……I myself watch my potassium food very carefully i | > soak my potatoes for 6 hours before i eat them and i dont eat any fruit | > if i dont receive a kidney son my downfall will be the fluid on the | > average i go into diaysis with five kilos on i always get bitched at | > about it but i just am so damn thirsty……but i guess we all are….. | > | |

Response:

In a word it (sucks)but its someting we all on dialysis have to live with or die by……I myself watch my potassium food very carefully i soak my potatoes for 6 hours before i eat them and i dont eat any fruit if i dont receive a kidney son my downfall will be the fluid on the average i go into diaysis with five kilos on i always get bitched at about it but i just am so damn thirsty……but i guess we all are…..

Response:

Bradley,   I am the Queen of Moaning about being thirsty on this ng.  I bought a huge diet coke tonight after dialysis and guzzled it like a cold beer on a 100 degree day.  I was unbelievably thirsty.  So 30 phos lo and 50 Renagel later…hee hee, just kidding, I am very content and not thirsty anymore. This diet does suck big time.  I am adjusting, however, I am starting to not miss things.  A lot of this is simple psychology.  I have been a diabetic for 26 years and if I think about creme doughnuts long enough, I eat one.  I will walk a mile for one.  So here is my post transplant meal(when I am ready) a tall tall tall glass of Diet coke with ice, a glass of wine and followed post meal with about 3 cups of coffee,  a very big plate of Broccoli cavatelli(sp?) with a huge creme doughnut for dessert, not one of those wimpy ass Dunkin Donuts, but a real-from-the -bakery mother weighing in at two pounds.  OH, and about 10 mozzarella sticks.  mmmmmmmm  I can’t wait.  AHHHHHHH  to dreammmmmmm…Cheryl "BRADLEY DRAKE" <CRA…@webtv.net> wrote in message

news:11092-38866AE2-2@storefull-156.iap.bryant.webtv.net… – Hide quoted text — Show quoted text -> In a word it (sucks)but its someting we all on dialysis have to live > with or die by……I myself watch my potassium food very carefully i > soak my potatoes for 6 hours before i eat them and i dont eat any fruit > if i dont receive a kidney son my downfall will be the fluid on the > average i go into diaysis with five kilos on i always get bitched at > about it but i just am so damn thirsty……but i guess we all are…..

Response:

In article <85n1o7$qs…@bob.news.rcn.net>, "TC3" <t…@erols.com> writes:

|> Triple amen to that, Celeste.  One morning I sat and ate the biggest bowl of |> cereal, milk saturating it and it was yummy(all done before going to |> dialysis).  You are so right about new techs and nurses, they go nuts over |> my weight gains and the older nurses and techs are like, "leave her be, she |> knows what she is doing, if she says take 10 off, do it."  Cheryl What’s the problem? If you pig out on potassium a (very) short while before dialysis, the potassium won’t peak in your bloodstream till some time while you’re on the machine. But by that time you’re decreasing the level via dialysis so there’s no problem. That’s what dialysis is for. I’ve gone to my treatment after my long break between, having eaten normally over the weekend and an orange in the afternoon, and gotten excellent blood work. Fluid is a different issue because once in you, you’ve got the "stresses" of the treatment to get it out. — Sam Saal      s…@haven.ios.com Vayiphtach HaShem et Pea HaAtone delete NOSPAM to reply

Response:

In article <387ECF27.C4D59…@iconn.net>,         David Lockwood <delc…@iconn.net> wrote: .>for the fluid.  This turned out to be much harder, but was also >seasonal.  In the summer, I could get away with drinking almost as much >as I wanted.  I sweat pretty easily, so if i felt like I was getting >bloated from to much fluid, a little mild exercise would do the trick. >In the winter, it was more difficult, so i just did my best to drink >less.  When i felt thirsty, I would only drink half of a glass of water, >not the whole glass.  This seemed to work for me, but it took alot of >willpower.

A trick that seems to work for me is to: 1) Make the drink as cold as possible 2) Use a hollow coffee stirrer as a straw.  It makes you feel like you’re    drinking a lot more that you actually are. – Hide quoted text — Show quoted text –

Response:

Celeste, I posted under a different post so I am not sure if you saw my response.  I think your web site will be the best…I am eagerly anticipating it.  I hope it’s a success and I know with your determination it will be very educational for all of us.  Cheryl "David Lockwood" <delc…@iconn.net> wrote in message

news:387ECF27.C4D59DA6@iconn.net… – Hide quoted text — Show quoted text -> Cheryl, > I prefer not to call it cheating.  It is Diet Management that is needed. > The way i handled it was that i knew that potassium was the most > immediate danger, followed by fluid intake.  So these were the things > that i focused on the hardest. > I love tomatoes, whether it be on a sandwich, or as sauce (homemade, of > course), so i made up my mind that most of the allotted potassium in my > diet was going to come from tomatoes.  Therefore, i had to severely > restrict potatoes and most veggies, but I could live with that.  Next, > for the fluid.  This turned out to be much harder, but was also > seasonal.  In the summer, I could get away with drinking almost as much > as I wanted.  I sweat pretty easily, so if i felt like I was getting > bloated from to much fluid, a little mild exercise would do the trick. > In the winter, it was more difficult, so i just did my best to drink > less.  When i felt thirsty, I would only drink half of a glass of water, > not the whole glass.  This seemed to work for me, but it took alot of > willpower. > The other difficult item to avoid is Phosphorous, and it is the one that > is hardest for most patients to really grasp the consequences of not > controlling, because the more serious problems from it are very long > term.  I love milk, but I knew that I couldn’t drink it on a regular > basis.  I could do without all the other dairy products, but i had to > have the milk once in a while.  I used it as a treat for good > performance.  If my monthlies showed a good Ph level, i would have a > glass  of milk to celebrate, and then back to the abstention.  This way, > I still got to have something i loved, but not in enough quantity to do > any harm. > Another thing that i did was do trade-offs.  If I went to a function and > was served something I knew would through my diet out of whack, I would > buckle down even harder for the next couple of days to make up for it. > If I knew something like this was coming up, such as at the Holidays, > then i would prepare for it prior to going.  This method kept my blood > work looking very good for 10 years, with only occasional problems > showing up( usually Ph, I sometimes would forget to take the binders, > especially when they had me on the liquid stuff. Yuch!) > By the way, a normal weight gain during the week was 5-6 lbs, and maybe > 8 on the weekend.  I could easily take off more without problems (during > that treatment), but I didn’t want to strain my heart too much, and more > weight will eventually strain your heart. > Also, I agree with Carla (season’s change) that there is no reason that > a dialysis patient can’t maintain a good exercise regimen, just that you > have to be careful not to overdo it either.  You start slow and build up > your activity slowly.  If your body is telling you you are doing too > much, try doing a little less or another type of activity.  Be patient. > Not every patient will be able to follow the same regimen, just work at > finding what works for you. > Dave. > TC3 wrote: > > I will get torched for this and really, I deserve it.  I drink one mug of > > coffee in the am, one glass of iced tea at lunch, at dinner too, and then > > one glass of iced tea or I cheat(I hate that word) and have diet coke with > > about 8 tums after at night.  Now, when I stretch it, I will make a second > > cup of coffee and have maybe one tiny glass of something in the afternoon. > > On dialysis days, one mug of coffee, a tiny bit of iced tea and one glass of > > something for dinner, those days I am not thirsty for some reason. > > Food-wise, well, since I am a diabetic and have severe gastroparesis I have > > to eat small meals.  When I stretch it, I will get Chinese.  That is my > > favorite cheat food.  And once a week I go to the grocery store that has a > > fabulous little dinette and eat a huge bowl of macaroni and cheese(it’s > > homemade)…I do this after therapy once a week.  Of course, 5 phos-lo, 5 > > Renagel and 8 tums later…it’s worth it.  I have learned to just try and > > chew gum(Trident peppermint or the blue kind is the best to curve thirst) or > > I will have a lollypop( 10 units of insulin to cover…damn I am high > > maintenance!)…it’s hard…I will go off the deep end every so often and > > chug a lug a whole Evian water or diet soda.  I have given up my beloved > > cereal(I have teethed on cereal forever) and I have given up a lot of dairy > > stuff, although every other day I drink a tiny bit of milk at bedtime. > > Aren’t you glad you asked?  I don’t urinate very much, in fact a bit in the > > am and in the pm and that is it.  So I have to really watch what I eat as I > > would rather have something to drink than eat something.  How about the rest > > of you????  I will be honest and tell all of you I gain an average of 10 > > pounds on the weekend and I am a little thing.  Only 5 feet.  And it hurts > > coming off on Monday!  The worse I ever gained was 15 pounds and I was short > > of breath, had rales in my lungs and felt like I was going to die, never > > again.   Good question….Cheryl > > "seasons change" <Come2je…@webtv.net> wrote in message > > news:6976-387E0CD3-15@storefull-108.iap.bryant.webtv.net… > > > Lately I’ve discovered that a lot of people seem to say that they drink > > > more than the 4 glasses allowed and find that they can stretch the food > > > limitations without reprucussions. Early on at my center, the dieition > > > told me that most patients do not follow the diet restrictions. I would > > > be interested to know what moderation means to you and just how far > > > you’ve been able to stretch things. > > > No matter what the question….Jesus is the Answer. > > >                WonByOne > > >             BANANAS FOR JESUS!!! > > >     No Jesus No Peace                                 Know Jesus Know > > > Peace

Response:

Dave,   I like that…"diet management."  It will be used instead of "cheating" I couldn’t come up with a good term for it.  I do the same things, I prepare if I know it’s going to be a long weekend of company or something big(with food galore) and now that I have been on hemo a year I have found I will give up eating something for a drink, even if it’s a small one.  Cheryl "David Lockwood" <delc…@iconn.net> wrote in message

news:387ECF27.C4D59DA6@iconn.net… – Hide quoted text — Show quoted text -> Cheryl, > I prefer not to call it cheating.  It is Diet Management that is needed. > The way i handled it was that i knew that potassium was the most > immediate danger, followed by fluid intake.  So these were the things > that i focused on the hardest. > I love tomatoes, whether it be on a sandwich, or as sauce (homemade, of > course), so i made up my mind that most of the allotted potassium in my > diet was going to come from tomatoes.  Therefore, i had to severely > restrict potatoes and most veggies, but I could live with that.  Next, > for the fluid.  This turned out to be much harder, but was also > seasonal.  In the summer, I could get away with drinking almost as much > as I wanted.  I sweat pretty easily, so if i felt like I was getting > bloated from to much fluid, a little mild exercise would do the trick. > In the winter, it was more difficult, so i just did my best to drink > less.  When i felt thirsty, I would only drink half of a glass of water, > not the whole glass.  This seemed to work for me, but it took alot of > willpower. > The other difficult item to avoid is Phosphorous, and it is the one that > is hardest for most patients to really grasp the consequences of not > controlling, because the more serious problems from it are very long > term.  I love milk, but I knew that I couldn’t drink it on a regular > basis.  I could do without all the other dairy products, but i had to > have the milk once in a while.  I used it as a treat for good > performance.  If my monthlies showed a good Ph level, i would have a > glass  of milk to celebrate, and then back to the abstention.  This way, > I still got to have something i loved, but not in enough quantity to do > any harm. > Another thing that i did was do trade-offs.  If I went to a function and > was served something I knew would through my diet out of whack, I would > buckle down even harder for the next couple of days to make up for it. > If I knew something like this was coming up, such as at the Holidays, > then i would prepare for it prior to going.  This method kept my blood > work looking very good for 10 years, with only occasional problems > showing up( usually Ph, I sometimes would forget to take the binders, > especially when they had me on the liquid stuff. Yuch!) > By the way, a normal weight gain during the week was 5-6 lbs, and maybe > 8 on the weekend.  I could easily take off more without problems (during > that treatment), but I didn’t want to strain my heart too much, and more > weight will eventually strain your heart. > Also, I agree with Carla (season’s change) that there is no reason that > a dialysis patient can’t maintain a good exercise regimen, just that you > have to be careful not to overdo it either.  You start slow and build up > your activity slowly.  If your body is telling you you are doing too > much, try doing a little less or another type of activity.  Be patient. > Not every patient will be able to follow the same regimen, just work at > finding what works for you. > Dave. > TC3 wrote: > > I will get torched for this and really, I deserve it.  I drink one mug of > > coffee in the am, one glass of iced tea at lunch, at dinner too, and then > > one glass of iced tea or I cheat(I hate that word) and have diet coke with > > about 8 tums after at night.  Now, when I stretch it, I will make a second > > cup of coffee and have maybe one tiny glass of something in the afternoon. > > On dialysis days, one mug of coffee, a tiny bit of iced tea and one glass of > > something for dinner, those days I am not thirsty for some reason. > > Food-wise, well, since I am a diabetic and have severe gastroparesis I have > > to eat small meals.  When I stretch it, I will get Chinese.  That is my > > favorite cheat food.  And once a week I go to the grocery store that has a > > fabulous little dinette and eat a huge bowl of macaroni and cheese(it’s > > homemade)…I do this after therapy once a week.  Of course, 5 phos-lo, 5 > > Renagel and 8 tums later…it’s worth it.  I have learned to just try and > > chew gum(Trident peppermint or the blue kind is the best to curve thirst) or > > I will have a lollypop( 10 units of insulin to cover…damn I am high > > maintenance!)…it’s hard…I will go off the deep end every so often and > > chug a lug a whole Evian water or diet soda.  I have given up my beloved > > cereal(I have teethed on cereal forever) and I have given up a lot of dairy > > stuff, although every other day I drink a tiny bit of milk at bedtime. > > Aren’t you glad you asked?  I don’t urinate very much, in fact a bit in the > > am and in the pm and that is it.  So I have to really watch what I eat as I > > would rather have something to drink than eat something.  How about the rest > > of you????  I will be honest and tell all of you I gain an average of 10 > > pounds on the weekend and I am a little thing.  Only 5 feet.  And it hurts > > coming off on Monday!  The worse I ever gained was 15 pounds and I was short > > of breath, had rales in my lungs and felt like I was going to die, never > > again.   Good question….Cheryl > > "seasons change" <Come2je…@webtv.net> wrote in message > > news:6976-387E0CD3-15@storefull-108.iap.bryant.webtv.net… > > > Lately I’ve discovered that a lot of people seem to say that they drink > > > more than the 4 glasses allowed and find that they can stretch the food > > > limitations without reprucussions. Early on at my center, the dieition > > > told me that most patients do not follow the diet restrictions. I would > > > be interested to know what moderation means to you and just how far > > > you’ve been able to stretch things. > > > No matter what the question….Jesus is the Answer. > > >                WonByOne > > >             BANANAS FOR JESUS!!! > > >     No Jesus No Peace                                 Know Jesus Know > > > Peace

Response:

Triple amen to that, Celeste.  One morning I sat and ate the biggest bowl of cereal, milk saturating it and it was yummy(all done before going to dialysis).  You are so right about new techs and nurses, they go nuts over my weight gains and the older nurses and techs are like, "leave her be, she knows what she is doing, if she says take 10 off, do it."  Cheryl "Celeste Brion" <bri…@penn.com> wrote in message

news:vZyf4.2136$CF2.5665@newsfeed.slurp.net… – Hide quoted text — Show quoted text -> No Torching from me Cheryl >     I fully understand where you are coming from on this. >     My regular pull over a weekend was always 4kg.  The only difference is I > never had much of a problem with it.  The doc and nurses were never much > concerned about it after they realized it was not causing me any problems. > Of course I got the regular chewing out occasionally from a new tech but the > other nurses would usually just tell them to back off and listen to me about > what to pull off. >     I’m like you I would much rather have a long tall glass of cold ice tea > than eat something.  You never realize how precious water is to you till you > have to do without it. >     About cheating, I have to admit my one weakness is fresh Strawberries. > I’ll confess to the fact that one day on the way to dialysis I stopped at > the fruit market and bought a whole pint of Strawberries and ate them on my > way to the clinic.  Of course I caught hell because my potassium shot up. > Sometimes you just have to live a little. > Celeste > TC3 <t…@erols.com> wrote in message

news:85l5q0$rql$1@bob.news.rcn.net… – Hide quoted text — Show quoted text -> : I will get torched for this and really, I deserve it.  I drink one mug of > : coffee in the am, one glass of iced tea at lunch, at dinner too, and then > : one glass of iced tea or I cheat(I hate that word) and have diet coke with > : about 8 tums after at night.  Now, when I stretch it, I will make a second > : cup of coffee and have maybe one tiny glass of something in the afternoon. > : On dialysis days, one mug of coffee, a tiny bit of iced tea and one glass > of > : something for dinner, those days I am not thirsty for some reason. > : Food-wise, well, since I am a diabetic and have severe gastroparesis I > have > : to eat small meals.  When I stretch it, I will get Chinese.  That is my > : favorite cheat food.  And once a week I go to the grocery store that has a > : fabulous little dinette and eat a huge bowl of macaroni and cheese(it’s > : homemade)…I do this after therapy once a week.  Of course, 5 phos-lo, 5 > : Renagel and 8 tums later…it’s worth it.  I have learned to just try and > : chew gum(Trident peppermint or the blue kind is the best to curve thirst) > or > : I will have a lollypop( 10 units of insulin to cover…damn I am high > : maintenance!)…it’s hard…I will go off the deep end every so often and > : chug a lug a whole Evian water or diet soda.  I have given up my beloved > : cereal(I have teethed on cereal forever) and I have given up a lot of > dairy > : stuff, although every other day I drink a tiny bit of milk at bedtime. > : Aren’t you glad you asked?  I don’t urinate very much, in fact a bit in > the > : am and in the pm and that is it.  So I have to really watch what I eat as > I > : would rather have something to drink than eat something.  How about the > rest > : of you????  I will be honest and tell all of you I gain an average of 10 > : pounds on the weekend and I am a little thing.  Only 5 feet.  And it hurts > : coming off on Monday!  The worse I ever gained was 15 pounds and I was > short > : of breath, had rales in my lungs and felt like I was going to die, never > : again.   Good question….Cheryl

Response:

Cheryl, I prefer not to call it cheating.  It is Diet Management that is needed. The way i handled it was that i knew that potassium was the most immediate danger, followed by fluid intake.  So these were the things that i focused on the hardest.   I love tomatoes, whether it be on a sandwich, or as sauce (homemade, of course), so i made up my mind that most of the allotted potassium in my diet was going to come from tomatoes.  Therefore, i had to severely restrict potatoes and most veggies, but I could live with that.  Next, for the fluid.  This turned out to be much harder, but was also seasonal.  In the summer, I could get away with drinking almost as much as I wanted.  I sweat pretty easily, so if i felt like I was getting bloated from to much fluid, a little mild exercise would do the trick. In the winter, it was more difficult, so i just did my best to drink less.  When i felt thirsty, I would only drink half of a glass of water, not the whole glass.  This seemed to work for me, but it took alot of willpower. The other difficult item to avoid is Phosphorous, and it is the one that is hardest for most patients to really grasp the consequences of not controlling, because the more serious problems from it are very long term.  I love milk, but I knew that I couldn’t drink it on a regular basis.  I could do without all the other dairy products, but i had to have the milk once in a while.  I used it as a treat for good performance.  If my monthlies showed a good Ph level, i would have a glass  of milk to celebrate, and then back to the abstention.  This way, I still got to have something i loved, but not in enough quantity to do any harm. Another thing that i did was do trade-offs.  If I went to a function and was served something I knew would through my diet out of whack, I would buckle down even harder for the next couple of days to make up for it. If I knew something like this was coming up, such as at the Holidays, then i would prepare for it prior to going.  This method kept my blood work looking very good for 10 years, with only occasional problems showing up( usually Ph, I sometimes would forget to take the binders, especially when they had me on the liquid stuff. Yuch!) By the way, a normal weight gain during the week was 5-6 lbs, and maybe 8 on the weekend.  I could easily take off more without problems (during that treatment), but I didn’t want to strain my heart too much, and more weight will eventually strain your heart. Also, I agree with Carla (season’s change) that there is no reason that a dialysis patient can’t maintain a good exercise regimen, just that you have to be careful not to overdo it either.  You start slow and build up your activity slowly.  If your body is telling you you are doing too much, try doing a little less or another type of activity.  Be patient. Not every patient will be able to follow the same regimen, just work at finding what works for you. Dave. – Hide quoted text — Show quoted text -TC3 wrote: > I will get torched for this and really, I deserve it.  I drink one mug of > coffee in the am, one glass of iced tea at lunch, at dinner too, and then > one glass of iced tea or I cheat(I hate that word) and have diet coke with > about 8 tums after at night.  Now, when I stretch it, I will make a second > cup of coffee and have maybe one tiny glass of something in the afternoon. > On dialysis days, one mug of coffee, a tiny bit of iced tea and one glass of > something for dinner, those days I am not thirsty for some reason. > Food-wise, well, since I am a diabetic and have severe gastroparesis I have > to eat small meals.  When I stretch it, I will get Chinese.  That is my > favorite cheat food.  And once a week I go to the grocery store that has a > fabulous little dinette and eat a huge bowl of macaroni and cheese(it’s > homemade)…I do this after therapy once a week.  Of course, 5 phos-lo, 5 > Renagel and 8 tums later…it’s worth it.  I have learned to just try and > chew gum(Trident peppermint or the blue kind is the best to curve thirst) or > I will have a lollypop( 10 units of insulin to cover…damn I am high > maintenance!)…it’s hard…I will go off the deep end every so often and > chug a lug a whole Evian water or diet soda.  I have given up my beloved > cereal(I have teethed on cereal forever) and I have given up a lot of dairy > stuff, although every other day I drink a tiny bit of milk at bedtime. > Aren’t you glad you asked?  I don’t urinate very much, in fact a bit in the > am and in the pm and that is it.  So I have to really watch what I eat as I > would rather have something to drink than eat something.  How about the rest > of you????  I will be honest and tell all of you I gain an average of 10 > pounds on the weekend and I am a little thing.  Only 5 feet.  And it hurts > coming off on Monday!  The worse I ever gained was 15 pounds and I was short > of breath, had rales in my lungs and felt like I was going to die, never > again.   Good question….Cheryl > "seasons change" <Come2je…@webtv.net> wrote in message > news:6976-387E0CD3-15@storefull-108.iap.bryant.webtv.net… > > Lately I’ve discovered that a lot of people seem to say that they drink > > more than the 4 glasses allowed and find that they can stretch the food > > limitations without reprucussions. Early on at my center, the dieition > > told me that most patients do not follow the diet restrictions. I would > > be interested to know what moderation means to you and just how far > > you’ve been able to stretch things. > > No matter what the question….Jesus is the Answer. > >                WonByOne > >             BANANAS FOR JESUS!!! > >     No Jesus No Peace                                 Know Jesus Know > > Peace

Response:

I was reading Ladies Home Journal the other nite.  Guess what foods help decrease cancer? Tomatoes Strawberries and Oranges! The Diet sucks.  It works if you’re  about 80 years old with gout.

Response:

snicker…snicker…snicker…I love your one liners.  Cheryl "trickster" <tricks…@syr.edu> wrote in message

news:387E43EB.5818@syr.edu… – Hide quoted text — Show quoted text -> I was reading Ladies Home Journal the other nite.  Guess what foods help > decrease cancer? > Tomatoes > Strawberries > and Oranges! > The Diet sucks.  It works if you’re  about 80 years old with gout.

Response:

No Torching from me Cheryl     I fully understand where you are coming from on this.     My regular pull over a weekend was always 4kg.  The only difference is I never had much of a problem with it.  The doc and nurses were never much concerned about it after they realized it was not causing me any problems. Of course I got the regular chewing out occasionally from a new tech but the other nurses would usually just tell them to back off and listen to me about what to pull off.     I’m like you I would much rather have a long tall glass of cold ice tea than eat something.  You never realize how precious water is to you till you have to do without it.     About cheating, I have to admit my one weakness is fresh Strawberries. I’ll confess to the fact that one day on the way to dialysis I stopped at the fruit market and bought a whole pint of Strawberries and ate them on my way to the clinic.  Of course I caught hell because my potassium shot up. Sometimes you just have to live a little. Celeste TC3 <t…@erols.com> wrote in message news:85l5q0$rql$1@bob.news.rcn.net…

: I will get torched for this and really, I deserve it.  I drink one mug of : coffee in the am, one glass of iced tea at lunch, at dinner too, and then : one glass of iced tea or I cheat(I hate that word) and have diet coke with : about 8 tums after at night.  Now, when I stretch it, I will make a second : cup of coffee and have maybe one tiny glass of something in the afternoon. : On dialysis days, one mug of coffee, a tiny bit of iced tea and one glass of : something for dinner, those days I am not thirsty for some reason. : Food-wise, well, since I am a diabetic and have severe gastroparesis I have : to eat small meals.  When I stretch it, I will get Chinese.  That is my : favorite cheat food.  And once a week I go to the grocery store that has a : fabulous little dinette and eat a huge bowl of macaroni and cheese(it’s : homemade)…I do this after therapy once a week.  Of course, 5 phos-lo, 5 : Renagel and 8 tums later…it’s worth it.  I have learned to just try and : chew gum(Trident peppermint or the blue kind is the best to curve thirst) or : I will have a lollypop( 10 units of insulin to cover…damn I am high : maintenance!)…it’s hard…I will go off the deep end every so often and : chug a lug a whole Evian water or diet soda.  I have given up my beloved : cereal(I have teethed on cereal forever) and I have given up a lot of dairy : stuff, although every other day I drink a tiny bit of milk at bedtime. : Aren’t you glad you asked?  I don’t urinate very much, in fact a bit in the : am and in the pm and that is it.  So I have to really watch what I eat as I : would rather have something to drink than eat something.  How about the rest : of you????  I will be honest and tell all of you I gain an average of 10 : pounds on the weekend and I am a little thing.  Only 5 feet.  And it hurts : coming off on Monday!  The worse I ever gained was 15 pounds and I was short : of breath, had rales in my lungs and felt like I was going to die, never : again.   Good question….Cheryl

Response:

I will get torched for this and really, I deserve it.  I drink one mug of coffee in the am, one glass of iced tea at lunch, at dinner too, and then one glass of iced tea or I cheat(I hate that word) and have diet coke with about 8 tums after at night.  Now, when I stretch it, I will make a second cup of coffee and have maybe one tiny glass of something in the afternoon. On dialysis days, one mug of coffee, a tiny bit of iced tea and one glass of something for dinner, those days I am not thirsty for some reason. Food-wise, well, since I am a diabetic and have severe gastroparesis I have to eat small meals.  When I stretch it, I will get Chinese.  That is my favorite cheat food.  And once a week I go to the grocery store that has a fabulous little dinette and eat a huge bowl of macaroni and cheese(it’s homemade)…I do this after therapy once a week.  Of course, 5 phos-lo, 5 Renagel and 8 tums later…it’s worth it.  I have learned to just try and chew gum(Trident peppermint or the blue kind is the best to curve thirst) or I will have a lollypop( 10 units of insulin to cover…damn I am high maintenance!)…it’s hard…I will go off the deep end every so often and chug a lug a whole Evian water or diet soda.  I have given up my beloved cereal(I have teethed on cereal forever) and I have given up a lot of dairy stuff, although every other day I drink a tiny bit of milk at bedtime. Aren’t you glad you asked?  I don’t urinate very much, in fact a bit in the am and in the pm and that is it.  So I have to really watch what I eat as I would rather have something to drink than eat something.  How about the rest of you????  I will be honest and tell all of you I gain an average of 10 pounds on the weekend and I am a little thing.  Only 5 feet.  And it hurts coming off on Monday!  The worse I ever gained was 15 pounds and I was short of breath, had rales in my lungs and felt like I was going to die, never again.   Good question….Cheryl "seasons change" <Come2je…@webtv.net> wrote in message

news:6976-387E0CD3-15@storefull-108.iap.bryant.webtv.net… – Hide quoted text — Show quoted text -> Lately I’ve discovered that a lot of people seem to say that they drink > more than the 4 glasses allowed and find that they can stretch the food > limitations without reprucussions. Early on at my center, the dieition > told me that most patients do not follow the diet restrictions. I would > be interested to know what moderation means to you and just how far > you’ve been able to stretch things. > No matter what the question….Jesus is the Answer. >                WonByOne >             BANANAS FOR JESUS!!! >     No Jesus No Peace                                 Know Jesus Know > Peace

Response:

Lately I’ve discovered that a lot of people seem to say that they drink more than the 4 glasses allowed and find that they can stretch the food limitations without reprucussions. Early on at my center, the dieition told me that most patients do not follow the diet restrictions. I would be interested to know what moderation means to you and just how far you’ve been able to stretch things. No matter what the question….Jesus is the Answer.                WonByOne             BANANAS FOR JESUS!!!     No Jesus No Peace                                 Know Jesus Know Peace

Response: